68

On the 24th, she turned 68 and it came and went quietly. Every year comes with the question– will this one be the last? It’s been about 10 years now since it became so absolutely apparent that something was wrong, and for women diagnosed with dementia around the age of 60, the average lifespan is an additional 8.9 years.

I so often wonder what she would think if she could see me today. I have no real good reason for it given our past and the damage done but that doesn’t matter. I will always wonder what she would think. It comes up most on the typical days– her birthday and Mother’s Day. On Mother’s Day I do have a new focus on how does my son see me? It’s a nice shift but that old question is still burried somewhere underneath.

For years, everyone told me I looked like her and for some time, I hated it. I now embrace it and share it with others. I do carry her in some small way with me, always. In that way, she is still here and always will be.

“I am tied by truth like an anchor
Anchored to a bottomless sea
I am floating freely in the heavens
Held in by your heart’s gravity

All because of love
All because of love
Even though sometimes you don’t know who I am

I am you, everything you do
Anything you say, you want me to be
You and me are charms on a chain
Linked eternally in what we can’t undo
And I am you”

The Box: Day 1

Now I remember why– when I acquired three boxes of my mom’s “important papers” from her old storage unit in 2017– I went fully through one of them and pushed the others aside, mentally exhausted and telling myself that I would tackle them in the future. I never did. I have skimmed just the top of this one box and already, I find myself wondering if I should put it away again or burn it in some sort of ceremonial letting go bonfire. In the hope of finding just one thing of potential importance, I suppose I will attempt to keep going, at least for now.

Day 1 Discoveries:

I made the honor roll in my final year of high school complete with letter from Pat Murphy, who was the Iowa House of Representatives minority leader at the time.

My mom created and saved “demerits” that she gave out to my brothers and I for various grievances. There were 9 demerits total between my brothers for things such as being “disrespectful,” didn’t do as what told,” and my personal favorite given to my little brother– “throwing demerits at me.” There was just 1 demerit for me which entailed my having made a terrible salad because I “was very lazy and didn’t care how I made it.”

My mom very briefly kept a prayer journal in 1995 in which she details what she feels is my older brother’s stepping away from a relationship with God after which she then writes of me positively. “Cub is really blossoming into a very nice girl. I am getting closer to her more and more every day.” I would have been 8 years old during this entry and I don’t feel like a child she birthed reading it.

The hardest thing to find and read was a letter my little brother wrote to her. I have no idea when he wrote it but it is clearly from when we all still lived under the same roof. He tells her of how depressed he is feeling and at one point writes “I love you and I need you to love me.”

Day 1 Conclusion:

Do I continue this journey? What am I getting out of this? These are just a couple of thoughts I find myself having. It feels early to push this one away, this may just take me longer than I anticipated.

Free

She met me in my dreams last night again as she does every few months or so… my mother. As always, it’s as though we are the same as we were over a decade ago– before the dementia and the loss of her, though not yet physical. She is visiting and I have my son with me– an unusual departure from past dreams where I typically revert back to days before this incredible life that I have created with my boys. She is annoyed and disinterested in my son, her focus entirely on me and what I can do for her. My husband is not in the room, and I seem to not want him to be. I message him on my phone telling him that she is still here and to please not show up until she is gone but he doesn’t get the message and soon walks into the room. Now she is angry. Why is he here? Why have I hidden him from her? I finally speak the only words said out loud in this dream and they are to him. “She wishes that I’d never found you. If it were up to her, I would be alone for my entire life.” Then I wake up.

In my past life with my mom, there was no room for anyone but her. She monopolized my life, and this was how she’d wanted it to always be. Today, as she is now in a home and unable to care for herself, I can’t help but constantly wonder what she would think if she could see that I have remained broken free with this life that I have built that is entirely my own. From the earliest I can remember, she would ask me often- “You’ll take care of me forever, right? I know you’ll be the one to do it.” Sometimes I almost feel guilty about it. Then I fall asleep and meet my past yet again and I remember why I worked so hard to get to this life. And, when I awake, I am once again free.